Caregiving
Number of unique resources found: 94
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Description: A list of links regarding caregiving provided by the AARP. These 25 or so links are a good reference for anyone who needs information on the care of retired and sick.
Caregiving Across the States: Publicly Funded Programs
Description: Provides information on publicly-funded caregiver support programs in each of the 50 states and the District of Columbia.
Description: Family Caregiver Alliance addresses the needs of families and friends providing long-term care at home. FCA offers programs at national, state and local levels to support and sustain caregivers.
National Alliance for Caregiving
Description: The National Alliance for Caregiving focuses on providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers.
National Alliance for Caregiving
Description: The National Alliance for Caregiving website is dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers.
Well Spouse Association: Support for Spousal Caregivers
Description: The Well Spouse Association focuses exclusively on the needs of all spouses caring for a chronically ill and/or disabled husband, wife, or partner. Includes resources, publications, and support group information.
– Evaluation –
State of the Science: Professional Partners Supporting Family Caregiving
Description: The American Journal of Nursing, the AARP Foundation, the Council on Social Work Education, the Family Caregiver Alliance; and the Rutgers Center for State Health Policy hosted an invitational symposium and produced this report on caregiving and supporting the family caregiver.
– General Information –
A Guide to Taking Care of Yourself
Description: Studies show that counseling and support groups in combination with respite and other services help caregivers remain in their caregiving role longer, with less stress and greater satisfaction. This fact sheet provides suggestions on how to care for yourself while caring for a loved one.
Description: A fact sheet with a variety of choices for example: paid employment or educational opportunities that the elderly can do to maintain an active lifestyle that unlocks the doors to many opportunities and health benefits.
AGING PARENTS: HELPING WHEN HEALTH FAILS 
Description: Gives adult sons and daughters general guidelines to consider if they face the dilemma about what to do about aged relatives.
Balancing Work and Caregiving: A Guide for Employers
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet is aimed at businesses and what employers can do to assist/support family caregivers.
Balancing Work and Caregiving: Tips for Employees
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet provides tips for caregivers who are trying to balance their work lives with caregiving.
Balancing Work, Family and Caregiving
Author: Cyr, Louise (4 more by this author)
Description: This 3 page fact sheet provides information on being a caregiver for an elder while being employed. It includes tips for balancing time and coping with multigenerational households.
Caregiver's Contacts: How to Get the Help You Need
Author: Wilken, Carolyn (9 more by this author)
Description: Busy caregivers need ways to find the help they need. Sometimes there are many sources of help. The Caregiver's Contacts sheet is a tool to help caregivers know who to contact under different situations.
Author: Braza, Kathleen (1 more by this author)
Description: Respite providers can experience all levels of grief when working with families under extreme stress. Bereavement Consultant, Kathleen Braza, discusses how to recognize grief, what to do with "unfinished business," rituals that can help when someone dies, and healing strategies for everyone working in this field.
Caregiving and Sibling Relationships: Challenges and Opportunities
Description: Provides suggestions on how siblings can cope with the challenges of maintaining their relationships while dealing with the stress and challenge of caring for their parents.
Caregiving: What is it? Who does it?
Author: Cyr, Louise (4 more by this author)
Description: This four page fact sheet includes facts on caregivers of elders, care receivers and caregiver roles.
Caring for Adults with Cognitive and Memory Impairments
Description: Provides suggestions and tips for caregivers caring for people with cognitive and memory impairments.
Caring for Elderly Family Members
Description: This factsheet explains how to help elderly family members live more happily, safely and comfortably.
Author: Shriner, Joyce (2 more by this author)
Description: Describes each of the four main areas of care for those who are coping with dying †physical, psychological, social, and spiritual. While the information applies directly to the dying person, it is also relevant to others who are coping with dying family members, friends, and associates of the dying person, as well as professional and volunteer caregivers.
Celebrate National Family Caregivers Month
Description: As the number of aging Baby Boomers increases, communities are grappling with the challenges of supportive services for their aging citizens. Includes caring for the caregiver and other important topics.
Center on Aging Studies Without Walls
Description: This website focuses on helping the elderly learn about elder mistreatment, family issues and relationships, mental health and aging, personal care and much more.
Centros de Recursos para Cuidadores de California
Description: This website provides links to a number of fact sheets in Spanish dealing with caregiving, stroke, depression, Alzheimer's disease, family care options, and legal issues.
Clothing: Silver Threads for the Golden Years
Description: Addresses the number of changes that take place as the body ages that may affect some physical, emotional, social and psychological aspects of a person's life. Clothing can then be used as a tool to help individuals deal with some of the changes brought on by the aging process.
Coping with Caregiving: How to Manage Stress When Caring for Elderly Relatives
Description: This publication is aimed at helping caregivers understand ways to reduce the conflict and stress sometimes caused by the demands of caregiving.
Dehydration in the Winter: Elderly At Risk
Description: Focuses on why the elderly are most vulnerable to dehydration and some of the common symptoms to look for.
El cuidado de nuestros ancianos
Description: This factsheet explains how to help elderly family members live more happily, safely and comfortably.
Facts about Caregivers and the Elderly
Author: Nolan, Jill (6 more by this author)
Description: Fact sheet on the problems and challenges faced by adult children as they care for their parents.
Final Wishes: End-of-life Decisions
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet provides a thoughtful set of suggestions for helping family members deal with end-of-life decisions.
Description: This website provides information on transitions of the lives of aging adults. It includes such topics as: feeling overwhelmed, taking care of the caregiver, and care giving 101.
Gift Ideas for Nursing Home Visits
Description: Provides low-cost or no-cost ideas for gifts, especially for loved ones in assisted care, hospital, or nursing homes.
Gifts Ideas for Nursing Home Visits
Author: Price, Christine (10 more by this author)
Description: This is a fact sheet on the kinds of gifts you should bring when visiting a loved one in a nursing home.
Have You Heard? Hearing Loss and Older Adults
Author: Dobb, Lynn (2 more by this author)
Description: "What is hearing impairment? The term 'hearing impairment' refers to..." This publication describes the situation that occurs regarding hearing loss. Also, how to know if you have hearing loss and what to do next.
Learning to Live Through Loss: Grief and the Mourning Process
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet addresses grief and the mourning process and how to assist family members in the process.
Learning to Live Through Loss: Understanding Men Who Grieve
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet focuses on how men’s grief sometimes differs from women’s and how understanding these differences can be helpful.
Learning to Live Through Loss: When Job Loss Triggers Grief
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet focuses on helping people understand and cope with losing their jobs.
Making Your Kitchen “User Friendly”
Author: Price, Christine (10 more by this author)
Description: This is a fact sheet on safety of your kitchen. It provides information, ideas, or tips on making your kitchen friendly for people of all ages emphasizing safety.
Author: Bosch, Kathy (2 more by this author)
Description: Information about facts on mental health and aging, warning signs, and contact information for different mental health services.
Moving your loved one to a nursing home: What you can do
Author: Price, Christine (10 more by this author)
Description: This is a fact sheet on moving a loved one into a nursing home or assisted living center.
Puzzled by Your Care Receiver's Refusal of Services
Author: Wilken, Carolyn (9 more by this author)
Description: This brief fact sheet is aimed at helping caregivers understand the care receivers’ refusal of help or services.
Recruiting and Retaining Respite Providers
Author: Workman, Susan; Kerri Bates
Description: Finding and keeping care providers is a challenge for all respite programs. This concise fact sheet offers strategies for both.
The Burdens and the Blessings of Family Caregiving
Author: Bearon, Lucille
Description: This is a fact sheet on the challenges as well as the positive side of caregiving.
Author: Rochford, Marilou (3 more by this author); Anne-Michelle Marsden
Description: This is the first issue of a newsletter series for adults who are caring for older family members. Discusses the challenges and rewards and provides information on other resources for the caregivers of older adults.
The Caring Connection, Issue 2
Author: Marsden, Anne-Michelle (12 more by this author); Marilou Rochford
Description: This is a resource for those who care for older adults. Includes information on managing stress, understanding losses, and caring for loved ones.
The Caring Connection, Issue 3
Author: Marsden, Anne-Michelle (12 more by this author); Marilou Rochford
Description: This is a resource for those who care for older adults. Includes information on managing stress, understanding losses, and caring for loved ones.
The Caring Connection, Issue 4
Author: Marsden, Anne-Michelle (12 more by this author); Marilou Rochford
Description: This is a resource for those who care for older adults. Includes information on managing stress, understanding losses, and caring for loved ones.
The Caring Connection, Issue 7
Author: Marsden, Anne-Michelle (12 more by this author); Marilou Rochford
Description: This is a resource for those who care for older adults. Includes information on managing stress, understanding losses, and caring for loved ones.
The Caring Connection, Issue 8
Author: Marsden, Anne-Michelle (12 more by this author); Marilou Rochford
Description: This is a resource for those who care for older adults. Includes information on managing stress, understanding losses, and caring for loved ones.
The National Clearinghouse for Long-Term Care Information
Description: The National Clearinghouse for Long-Term Care Information Web site provides comprehensive information about long-term care planning, services and financing options, along with tools to help people begin the planning process.
Tips when visiting a nursing home
Author: Price, Christine (10 more by this author)
Description: This is a fact sheet on how to properly approach and visit a nursing home.
Description: Discusses the many innovations created to assist older adults such as telemedicine, different sensors and control devices or even robotics.
– Professional Development –
Description: The toolkit is a step-by-step resource filled with practical information and resources designed for program administrators and practitioners.
Description: This is a group for individuals who are caring for an older adult, person with a disability, or the child of a member of your family. The group is sponsored by the Family Caregiving Community of Practice at www.extension.org. This site contains research-based information and learning tools related to family caregiving.
Families Caring Linked in Group
Description: This group is for persons who care for an older adult, person with a disability, or child of a relative. This could be both in a professional or informal capacity.
Description: This Twitter page is for persons who care for an older adult, person with a disability, or child of a relative. This could be both in a professional or informal capacity.
Description: National Council on Aging (NCOA) is a charitable organization with a national network of more than 14,000 organizations and leaders. Members include senior centers, area agencies on aging, adult day service centers, faith-based service organizations, senior housing facilities, employment services, consumer groups, and leaders from academia, business, and labor. Programs help older people remain healthy and independent, find jobs, increase access to benefits programs, and discover meaningful ways to continue contributing to society. Includes links to professional development and ways to become involved in the Aging Advocacy Network.
Wisconsin Alliance for Family Caregiving
Description: This site is designed to help professionals working with family caregivers find resource materials, research, training and networking opportunities. Family caregivers will also find the site helpful for locating family caregiving classes and caregiving resources that address everyday needs and concerns of caregivers.
– Programming Resource –
Description: A fact sheet with a variety of choices for example: paid employment or educational opportunities that the elderly can do to maintain an active lifestyle that unlocks the doors to many opportunities and health benefits.
Alzheimer's Caregiving at Home Toolkit
Description: Alzheimer's disease knows no boundaries and all communities face the challenges of caring for families needing support and guidance. As the number of people suffering from or caring for someone with Alzheimer's grows, the need for information on caregiving increases. This workshop planning kit is designed to provide educators and health care providers with successful presentation tools and resources to conduct workshops for non-professional individuals providing informal, at-home caregiving.
Alzheimer's Caregiving at Home Toolkit
Description: Alzheimer's disease knows no boundaries and all communities face the challenges of caring for families needing support and guidance. As the number of people suffering from or caring for someone with Alzheimer's grows, the need for information on caregiving increases. This workshop planning kit is designed to provide educators and health care providers with successful presentation tools and resources to conduct workshops for non-professional individuals providing informal, at-home caregiving.
Alzheimer's Caregiving at Home Toolkit
Description: This workshop planning kit is designed to provide educators and health care providers with successful presentation tools and resources to conduct workshops for non-professional individuals providing informal, at-home caregiving with loved ones suffering from Alzheimer's disease.
Assist Guide Information Services
Description: AGIS Network (Assist Guide Information Services) is the leading national provider of information services connecting government agencies, employers, service providers, and families in the eldercare and disability communities.
Balancing Work and Caregiving: A Guide for Employers
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet is aimed at businesses and what employers can do to assist/support family caregivers.
Balancing Work and Caregiving: Tips for Employees
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet provides tips for caregivers who are trying to balance their work lives with caregiving.
Balancing Work, Family and Caregiving
Author: Cyr, Louise (4 more by this author)
Description: This fact sheet provides information and suggestions for people who are caregivers for elderly members of their family but also employees. Provides suggestions for balancing the various roles and demands.
Brookdale Foundation: The Brookdale Relatives As Parents Program (RAPP)
Description: This site focuses on the needs and challenges of America's elderly population.
Caregiver's Contacts: How to Get the Help You Need
Author: Wilken, Carolyn (9 more by this author)
Description: Busy caregivers need ways to find the help they need. Sometimes there are many sources of help. The Caregiver's Contacts sheet is a tool to help caregivers know who to contact under different situations.
Caregiving Across the States: A State-by-State Resource
Description: This interactive database, accessible in map format on the FCA website, allows caregivers and service providers to access information specific to their state. The database includes a separate profile for each state and the District of Columbia.
Caregiving: What is it? Who does it?
Author: Cyr, Louise (4 more by this author)
Description: This fact sheet includes facts on caregivers of elders, facts on care receivers and caregiver roles.
Description: This guidebook is for caregivers of people with Alzheimer's disease.
Center on Aging Studies Without Walls
Description: This website focuses on helping the elderly learn about elder mistreatment, family issues and relationships, mental health and aging, personal care and much more.
Clothing: Silver Threads for the Golden Years
Description: Addresses the number of changes that take place as the body ages that may affect some physical, emotional, social and psychological aspects of a person's life. Clothing can then be used as a tool to help individuals deal with some of the changes brought on by the aging process.
Coping with the Death of a Loved One
Author: Cyr, Louise (4 more by this author)
Description: This fact sheet provides information and suggestions for caregivers who are coping with the death of a loved one. Provides information on planning ahead for legal and financial obligations, funerals, etc.
Decisions About Living Arrangements
Author: Kirkland, Louise (1 more by this author)
Description: This fact sheet provides information on helping older persons make decisions about living alone, moving into assisted care, and or other housing options.
Author: Killam, Deborah (2 more by this author)
Description: This fact sheet provides information on how caregivers can help aging friends, relatives and loved ones cope with growing older.
Author: Killam, Deborah (2 more by this author)
Description: This fact sheet provides information for caregivers on how to encourage the elderly in their care to stay active and involved.
Facts about Caregivers and the Elderly
Author: Nolan, Jill (6 more by this author)
Description: Fact sheet on the problems and challenges faced by adult children as they care for their parents.
Description: Family Album Radio is a daily radio program on family issues, designed to help families improve their lives. This research based radio program on family life is distributed through National Public Radio and a companion website. Podcasts and MP3 files are archived on a host of topics including: parenting, relationships, caregiving, health, nutrition, family finances and home safety.
Final Wishes: End-of-life Decisions
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet provides a thoughtful set of suggestions for helping family members deal with end-of-life decisions.
How Can I Help An Older Person
Author: Bosch, Kathy (2 more by this author)
Description: An article especially for caretakers who work with the elderly. The article focuses on how to talk to an older person with a mental illness and how to refer them for help as well as references for where to go.
Ithaca College Gerontology Institute
Description: This site provides educational resources, information on upcoming lectures, and research in gerontology.
Learning to Live Through Loss: Grief and the Mourning Process
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet addresses grief and the mourning process and how to assist family members in the process.
Learning to Live Through Loss: Understanding Men Who Grieve
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet focuses on how men’s grief sometimes differs from women’s and how understanding these differences can be helpful.
Learning to Live Through Loss: When Job Loss Triggers Grief
Author: Wilken, Carolyn (9 more by this author)
Description: This fact sheet focuses on helping people understand and cope with losing their jobs.
Living Options for Adults Needing Assistance
Author: Teaster, Pamela; Karen A. Roberto
Description: This fact sheet provides a tool for helping adults needing assistance make decisions.
Author: Bosch, Kathy (2 more by this author)
Description: Information about facts on mental health and aging, warning signs, and contact information for different mental health services.
Author: Kerr, Mary
Description: This fact sheet provides an overview of music therapy, the systematic application of music to aid in the treatment of physiological and psychological aspects on an illness or disability, and discusses the benefits of music especially to older adults.
Description: The National Caregivers Library is an extensive online library for caregivers. It consists articles, forms, checklists and links to topic-specific external resources.
Description: National Council on Aging (NCOA) is a charitable organization with a national network of more than 14,000 organizations and leaders. Members include senior centers, area agencies on aging, adult day service centers, faith-based service organizations, senior housing facilities, employment services, consumer groups, and leaders from academia, business, and labor. Programs help older people remain healthy and independent, find jobs, increase access to benefits programs, and discover meaningful ways to continue contributing to society. Includes links to professional development and ways to become involved in the Aging Advocacy Network.
National Family Caregiver Support Program
Description: This website includes information on the impact and importance of family caregivers; tools and resources to plan and host a caregiver event; nationwide calendar; video and written testimonials from caregivers.
Author: Clark-McGrath, Rae (1 more by this author)
Description: This fact sheet provides information on decision making and developing action plans; for people who care for elders.
Putting Legal and Financial Affairs in Order
Author: Killam, Deborah (2 more by this author)
Description: This fact sheet provides information for elders and people who care for them; includes information on wills, accounts, trusts and more
Puzzled by Your Care Receiver's Refusal of Services
Author: Wilken, Carolyn (9 more by this author)
Description: This brief fact sheet is aimed at helping caregivers understand the care receivers’ refusal of help or services.
Reduce Accidental Falls In Your Home
Description: A guide for the elderly on safety tips and ways to avoid different hazards to make their home a safer and more comfortable place to live.
Spanish Language National Institute on Aging (NIA)
Description: Accurate, up-to-date information on health issues affecting Hispanic seniors is now available online in Spanish from the National Institute on Aging (NIA), part of the National Institutes of Health. The user-friendly website has information on a wide range of health topics, including diseases such as Alzheimer's, cancer and diabetes.
Description: Provides articles, fact sheets, message boards and other tools to connect caregivers and provide support.
Author: Kirkland, Louise (1 more by this author)
Description: This fact sheet provides ideas on how to support people who care for elders; includes the “Caregiver’s Bill of Rights.”
The Burdens and the Blessings of Family Caregiving
Author: Bearon, Lucille
Description: This is a fact sheet on the challenges as well as the positive side of caregiving.
The Caring Connection, Issue 10
Author: Marsden, Anne-Michelle (12 more by this author); Marilou Rochford
Description: This is a resource for those who care for older adults. Includes information on managing stress, understanding losses, and caring for loved ones.
The Caring Connection, Issue 12
Author: Marsden, Anne-Michelle (12 more by this author); Marilou Rochford
Description: This is a resource for those who care for older adults. Includes information on managing stress, understanding losses, and caring for loved ones.
Description: Kansas State University and North Carolina State University have partnered within Second Life® to create educational tools for consumers. The goal of this initial project is: To tell people about design features and assistive technology that enable a person to live at home despite physical or mental challenges caused by aging, illness, or disability.
The National Clearinghouse for Long-Term Care Information
Description: The National Clearinghouse for Long-Term Care Information Web site provides comprehensive information about long-term care planning, services and financing options, along with tools to help people begin the planning process.
Volunteer Training Manual:Seniors CAN
Description: Community based program that takes place in senior centers or congregate sites for adults 55 and older. The program is designed to maintain mental health acuity, selfâ€efficacy and wellness to improve quality of life.
Weill Cornell Center for Aging Research and Clinical Care
Description: The mission of this center is to improve the quality-of-life of older adults through an integration of Cornell's Aging Programs in research, clinical care, and teaching.
When You Take Care of Mom and Hold Down a Job
Description: This is a fact sheet on taking care of a parent while holding down your job.
Wisconsin Alliance for Family Caregiving
Description: This site is designed to help professionals working with family caregivers find resource materials, research, training and networking opportunities. Family caregivers will also find the site helpful for locating family caregiving classes and caregiving resources that address everyday needs and concerns of caregivers.
– Research –
Addressing the Caregiving Crisis
Author: Carter, Rosalynn
Description: This issue of Preventing Chronic Disease (PCD) focuses on a set of concerns that is likely to challenge the public’s creative spirit and resourcefulness for the next 30 years. Public health is the science and art of preventing disease, prolonging life, and promoting physical and mental health. family caregivers.
Family Caregivers – What They Spend, What They Sacrifice
Description: This study was undertaken to explore the financial aspects of caregiving for all types of family caregivers, including spousal caregivers. The study included a national telephone survey to examine costs of caregiving and their correlates of 1,000 family caregivers. In addition to the survey, a sample of survey respondents was recruited to participate in a 30-day study of actual expenses by keeping a diary of these expenses, as well as the opportunity costs associated with their caregiving responsibilities.
Ithaca College Gerontology Institute
Description: This site provides educational resources, information on upcoming lectures, and research in gerontology.
Nutrition Education Issues for Older Adults
Author: Johnson, Mary Ann; Jacquelyn W. McClelland; Dawn Penn; Sohyun Park
Description: this review summarizes dietary and nutritional recommendations, as well as the need for and value of nutrition education for older adults. Topics addressed include decreasing sodium; increasing the intakes of fruits, vegetables, whole grains, low-fat milk products, vitamins B12 and D from fortified foods or dietary supplements; and understanding the importance of physical activity and weight management.
Resilience and Recovery: Findings from the Kauai Longitudinal Study
Author: Werner, E.
Description: The Kauai Longitudinal Study monitored the development of a cohort of children at intervals from birth to 40 years of age, focusing on risk and protective factors and how these related to successful life outcomes. One key finding is that the same factors that promote resilience in at-risk children an youth also promote recovery in young adults who had experienced difficulties. In particular, supportive relationships with caregivers, extended family, and community members were associated with both resilience and recovery. (Download the PDF file from this website.)
Weill Cornell Center for Aging Research and Clinical Care
Description: The mission of this center is to improve the quality-of-life of older adults through an integration of Cornell's Aging Programs in research, clinical care, and teaching.
Description: This report presents the results of two studies conducted by Mathew Greenwald & Associates, Inc. on behalf of the National Alliance for Caregivers and the United Hospital Fund. The research had three main objectives: To determine the prevalence of caregiving among children nationwide; to learn what role children play in giving care; and to learn how the caregiving role impacts the life of a child.